Thursday, July 15, 2010

Saving Sammy

I finally got around to catching up on research. The fairly new book (Sept.09) Saving Sammy and Today Show interview is a true inspiration. I enjoyed watching the interview and was so happy to know that the mom has shared her story.

The story is about her son that was diagnosed with what I think is severe OCD but actually had PANDAS.

The fear and hesitation in the doctor voice made me sad, but I am glad she did put herself out there. Rare for anyone in this business of "new" illnesses caused by bacteria or viruses that were once thought benign such as Lyme, Bartonella, Babesia, Mycoplasma, and last but not least, Strep.
I dream of the day that doctors refer to dynamic, updated, guidelines that reflect the children that reside in our classrooms and in our homes. Our generation.

2 comments:

ChickiePea said...

I just found your blog :) Are you on ACN forums by any chance? It is a great resource for PANDAS parents to come together.

I have a PANDAS daughter, age 9, who was just diagnosed and treated almost a year ago.

We blog about dietary changes we are trying. www.chickipea.wordpress.com if you are interested.

Ashley loves Leo said...

Hi ChickiePea. Thanks for writing! Yes, I've roamed around the ACN site before, it is great! At this point our PANDAS is gone, thankfully. I will take a look at your site!