The story is about her son that was diagnosed with what I think is severe OCD but actually had PANDAS.
The fear and hesitation in the doctor voice made me sad, but I am glad she did put herself out there. Rare for anyone in this business of "new" illnesses caused by bacteria or viruses that were once thought benign such as Lyme, Bartonella, Babesia, Mycoplasma, and last but not least, Strep.
I dream of the day that doctors refer to dynamic, updated, guidelines that reflect the children that reside in our classrooms and in our homes. Our generation.
2 comments:
I just found your blog :) Are you on ACN forums by any chance? It is a great resource for PANDAS parents to come together.
I have a PANDAS daughter, age 9, who was just diagnosed and treated almost a year ago.
We blog about dietary changes we are trying. www.chickipea.wordpress.com if you are interested.
Hi ChickiePea. Thanks for writing! Yes, I've roamed around the ACN site before, it is great! At this point our PANDAS is gone, thankfully. I will take a look at your site!
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